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Consultations

Not Dead Yet Letter to Peers

159 voices, one letter: standing with peers who stood with usWe said thank you to the Lords. Here’s why it mattered.In March 2026, something quietly significant happened. Not Dead Yet UK coordinated an open letter to the House of Lords. It was signed by 10 organisations and 149
Marc Goblot 14 Apr 2026

Call For Evidence: The Independent National Maternity and Neonatal Investigation

The Department for Health and Social Care (DHSC) have shared the following with the RSN. The Independent National Maternity and Neonatal Investigation, chaired by Baroness Amos, has launched a Call for Evidence. Baroness Amos is asking women and families across England to share their experiences of maternity and neonatal care.
Marc Goblot 05 Feb 2026

Consultation: The Down Syndrome Act Guidance

The DHSC has recently launched a consultation on the Down Syndrome Act 2022 draft statutory guidance, including Easy Read and BSL versions.  Down Syndrome Act 2022 draft statutory guidanceThis consultation seeks views on the draft statutory guidance issued under the Down Syndrome Act 2022.GOV.UKDepartment of Health and Social
Marc Goblot 12 Jan 2026

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